An update on activities

The lead team based in Sweden has earlier compiled a paper manual through a thorough literature review, qualitative research, scoping review and consultation meetings with couples where one partner has dementia. Since the beginning of the project, the work programme team developed networks of people living with dementia and their spouses/partners in Sweden and set up comparable networks in England. This enabled the work programme to undertake in-depth consultations with people living with dementia and their spouses/partners. During these consultations, it became clear that the translated English version of the guide required further consideration and amendment to be culturally sensitive and transferable. Thus the paper manual underwent major revisions from the original Swedish manual. The researchers based in both the countries worked together to make the manual relevant to both Swedish and English contexts.

A software development manager based at the University of Manchester has been working closely with the research team to develop the app. A prototype and the near final version of the app will be introduced to the couples in on-going advisory/consultation meetings. These consultations will aim to identify and fix bugs in the app prior to the feasibility study phase.

Work Programme 6: Couple-orientated self-management course

To date, the first draft of the couple-orientated self-management course is delivered in Swedish only, and in paper format.

The developing of the course is on-going (phase 1). Since June, two couples living with dementia are actively involved in the process together with Therese Bielsten (doctoral student).

Three additional couples living with dementia will take part in the developing phase, beginning in August, 2015.