Dr Hazel Morbey and Dr Andrew Harding travelled to Amsterdam to present posters at the COMET Initiative 7th meeting. The posters focused on the role of co-research and the final core outcome set. The presentations and the posters were well received, prompted discussion with interested researchers also helped to inform further stages of the study.
Not only will this work inform ‘what to measure’ in research, but it also has potential to inform the design of services and interventions to affect these outcomes. The team have recently held discussions with key contacts around how this might be done. The WP3 team are continuing to write up findings and are also undertaking a review to locate existing outcome measurement instruments that adequately accommodate items in the core outcome set.
Work Programme 3, based at Lancaster University, has been busy sharing its work at other meetings and conferences over the summer. In July, Andrew Harding gave a presentation at the British Society of Gerontology meeting in Swansea, on how WP3 has privileged the views of people living with dementia in the study design, which was well-received. A week or so later the Division of Health Research at Lancaster University funded Andrew to travel to San Francisco to take part in the 2017 meeting of the International Association of Gerontology and Geriatrics, the theme of which was Global Aging and Health: Bridging science, policy and practice. His presentation focused on the differences noted between trial outcomes vs what is important to people living with dementia. See photographs from the conference below.
Having gained a successful NHS REC ethics amendment, recruitment is due to start soon for a Delphi survey involving people living with dementia, care partners, health & social care professionals, researchers and policymakers/commissioners. Anyone interested in taking part is invited to contact Andrew Harding (firstname.lastname@example.org ) for further information.
Work Programme 3 was invited to attend the 2017 Town and Gown event on 7 September in Lancaster Town Hall and used this public event to display a recruitment poster and distribute Delphi survey flyers.